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Telethon 2020 starts this Friday, to raise funds for the research on innovative therapies for rare diseases. A Telethon not as usual, due to the coronavirus crisis and health constraints. There will be very few events on the ground and therefore a very different atmosphere recognizes Patrick Charpentier, the AFM-Telethon delegate, in Limousin. He was a guest of France Bleu Limousin this Friday, to talk about this event and encourage the population to mobilize despite everything.
“What will be missing is, as Pierre Tchernia said, this July 14th in winter, which brought together all generations amicably”, explains Patrick Charpentier. The party was a really good way to generate a wave of solidarity, but obviously it’s not about giving up for the organizers.
“We are in the middle of the storm and we will have to be stronger than ever, but _we know how to resist and fight the Telethon, it is in our genes_“ insists the delegate of the demonstration in Limousin. There will be no large gatherings in village halls or other places where barrier gestures are difficult to apply. However, the lotteries can be held on to raise funds. these field events usually carry 40% of the funds raised by Telethon. This time we will therefore have to place even more emphasis on remote collection, via the telephone and calls to 36 37, which this year are also partly managed by the Corrèze Tellis call center.
Even the FM-Telethon executives are betting more than ever the television program to raise awareness public and encourage people to donate. The operation is sponsored this year by singer M Pokora and many other stars will also take turns on French televisions to host this two-day program.
Uncertainties related to the pandemic
The Telethon is not in danger of being eclipsed by the coronavirus pandemic that occupies all minds this year. Patrick Charpentier ignores this question by indicating on the contrary that, more than ever, everyone should worry about it, because for him the two struggles are similar.
“People with neuromuscular diseases have found themselves in the same situation as the whole world today: there is a virus, we have a diagnosis called Covid and we have all the research from around the world that has put astronomical means to find the vaccine solution. Well, AFM Téléthon, for 40 years, on people who have been diagnosed with rare diseases, neuromuscular diseases, we have committed financial means and we have results! “
Advances that apply to a broad field, beyond neuromuscular diseases, “on drugs, on gene therapy, on muscle therapy” insists the AFM-Telethon delegate in Limousin. To continue he insists on the importance of supporting research, but also the associations that carry out this research for the most disadvantaged and for the rarest diseases.
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