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The first feedback from the pilot phase shows the anxiety felt by 78.9% of respondents.
“We realized that the situation would last and that beyond the people with Covid or other diseases, there would be an impact on our lifestyle”, explains to AFP Gérard Raymond, president of France Assos Santé, a network of 85 patient associations on the initiative of this study called “Vivre-Covid19” launched this Monday.
The only one of its kind, it plans to recruit 10,000 major participants in mainland France who, until May 2022, will be invited to answer a questionnaire each month. The study cohort includes chronically ill people, people with disabilities, caregivers and healthy people.
“We need more respondents”
According to Caroline Guyot, seconded to France by Assos Santé to support the project and ensure the legal framework in particular, the questions concern “the three themes of anxiety, care and daily life”.
A first pilot phase was conducted in the spring, during the first confinement, with 2,000 respondents. The first returns show an anxiety felt by 78.9% of the interviewees and a degraded assistance for 61.5%, who had an unscheduled appointment, and this without a new proposed date in 32.9% of cases.
“The number of responses from the pilot phase is too low to say that we have concrete results, these are trends that show something but we wait: statistically, we must have more respondents to be able to say that our results are fair and solid”, insists Caroline Guyot .
The impact study is expected until May 2022. The first results are expected in May.
“There was a real impact from the first wave”
However, data from the French Hospitaller Federation (FHF) confirm a massive postponement of surgical and medical procedures with “two million non-hospital stays” in public and private health facilities between mid-March and the end of June.
“There was a real impact from the first wave with more out-of-hospital cardiac arrests: people did not go to the emergency room because they were afraid or the samu was not reachable,” testifies Professor Gérard Helft, of the French Federation of Cardiology.
A general practitioner from Val-d’Oise tells AFP the recent case of a patient “followed for heart failure associated with kidney failure who had to see a nephrologist during the summer but did not make an appointment – for fear of contracting Covid. It ends with a significant deterioration of your kidney function, which requires urgent specialist advice and an adjustment of your treatments. “
Geneticist Axel Kahn, president of the National Cancer League (member of France Assos Santé), welcomes AFP an “indispensable” study to be prepared in case of “another Trafalgar stroke that throttles hospitals”. For example, it supports the creation of cancer centers in all regions, “centers dedicated to the essential continuity of care that cannot be postponed”.
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